Ready or not. . .

"I believe today what I have always believed: that God is good, that the world he made is extraordinary, and that his comfort is like nothing else on earth." Shauna Niequist, Bittersweet

I began to write a post with a true "nuts and bolts" update on our trip to Cincinnati yesterday, but it's now after 11 pm, and I am just so tired. I will try to do this in the next few days. Danica did amazingly well with her sedation and flexion and extension MRI. The appointment with Dr. Crawford was as smooth as could have been expected. Dr. Crone spent over an hour with Dan and I going over all Danica's scans, past and present. He answered every possible question we had about her Chiari decompression and her fusion. We signed the surgery consent forms and will hear from their offices next week the actual date they can get their schedules together and an OR for a day.

These are a few of the photos from yesterday. It was such a blessing to have my mom along to help us. Danica acted like she owned the place and can practically weigh and measure herself and check her blood pressure, temp and pulse without adult help at this point. Dr. Crone fitted her for a new Aspen collar. It gives her much more support than her older one. She is very proud of it. She was also so proud to blow bubbles through her mask and didn't fight the gas at all when it came time to sniff the cherry smell. She never ceases to amaze me. Our hope remains!