Tuesday, November 18, 2014
I have been a little timid about spreading the news of a new place I'm writing. Many of you are asking, "What happened to you and how can we keep following your story and praying for your family?" Click on www.MonicaKayeSnyder.com. Poke around the site. It's new and won't take long. Subscribe to receive updates in the right sidebar and click on any of the social media sites you use to link there. It's very emotional to reach back to the beginning of Team Danica and remember all the people who have become our prayer warriors, cheerleaders, givers and friends. Our Hope remains!
Posted by Monica Kaye at 6:21 PM
Tuesday, November 4, 2014
(Photography by our dear Christina Adam from Grace Designs Photography)
Healing is slow.
Neck wounds and heart wounds seem inseparable.
My surgery was a success. My shoulder that was drooping several inches is higher. I have feeling back in my left arm and hand. I have not had one piercing headache or loss of vision since. All this points to the wisdom of the levels fused and how their instability was causing my symptoms. At the end of the day the protractor and the scans tell the truth most of the time. The rest is God working through a gifted man's hands. I also felt very sure I needed to take the place offered on my surgeon's schedule. I wanted to wait, but my gut told me I shouldn't delay.
I am grateful in a way words stop being useful. I've been scolded for the wrong words, too many words, not enough words, and it tears away little pieces of what I've always tried to do here. Only God knows my heart, and I trust Him with it as I pray over posts and write and delete while I hold back not what I'm afraid of saying but rather what you might not be brave enough to read. This makes me an immature writer. I care too much. I hedge for one the truth ninety-nine need to hear. I think I'm growing into a different kind of brave. Only time will tell.
Mixed in all this neurosurgery stuff there was a catalyst pushing me towards something I believe God really wants me to do. Of course it has to do with writing. In the past few months He has been using clear sign posts of providence to push me in uncomfortable places making sure I get the point. The fork in the road doesn't give me two paths. I don't mean I hear voices from the sky or see writing on the wall. What I do mean is I have been on my knees drawing circles around a call. I have been committing to Him and begging for Him to direct my paths, and He started to answer by making only one path appear. Just one path. And I began the hard work. Here's the thing. I truly needed to be more well, to have my arms and hands working, my head clear enough and in just a little less pain so I wouldn't medicate away any clarity I needed for this daunting job.
Earlier this year I begged God for a spiritual retreat here in Ohio with some like minded women who are also writers. Most of them are not published authors. They are women who share their faith day to day on personal blogs. Their desire for God to REFINE the very motives of their hearts in every word they share out on this almost infinite web space is what made me believe I was to attend this weekend of worship. Oh, and my Christa Wells was there. (I call her "mine" because her music has soothed my soul through the darkest days of my life.) I had scrimped and saved. I registered. I paid extra to have a room alone fearing mast cell reactions and anticipating needing more breaks. I had even decided I would drive myself. Salt Fork Lodge is not that far, a straight shot, and I wanted this so badly. Instead, I became very sick the week before the retreat. I ended up in Maryland for plasmapheresis and the beginning of IVIG in twelve of the most refining days ever, most of which I spent in solitude. I was very alone. I was tremendously sad, but I was really too sick to doubt there was some kind of cosmic mix up. I was given a chance for a treatment most could only beg for. Another woman who wouldn't have been able to attend the retreat took my place, and I felt good about this, even grateful.
It was the trip last week that didn't happen that crushed me. I had this opportunity to travel to Chicago and piece together the Storyline God's been writing in my life but also to intimately learn from authors I greatly admire about their own journeys to publication. This was huge. I was sure God meant for the asking and receiving. I haven't wanted anything so badly in a very long time. God said "Yes" to something I had prayed about and desperately wanted for almost a year. I couldn't pay for this, especially in light of my new surgery, but it was being offered to me. A gift. There's no way to write a better intro to the back story of how God worked to make my book a reality, right? Storyline was Wednesday through Saturday, exactly a week to the day from when I had my eighteenth surgery scheduled in Maryland, but I was confident I would push through and make it there. God didn't get this wrong. I was going to do both.
More than this I would have had time to spend with a woman who visited me on the worst day of my above mentioned hospitalization in the spring, A beautiful spirit who came in with her classic khaki trench and blue peep toe TOMS and didn't even flinch to see the mess I was. She had been reading Team Danica for awhile. Her own daughter has had a Chiari decompression. She and her other daughter suffer from EDS as well and all that goes along with our disease. She told me as she dropped on her knees on that filthy hospital room floor I had to write. I wanted to quit it ALL that day, and she came in her own pain and told me straight up God had something I needed to do. This thing we live has a way of making fast friends, tight friends and forever friends. She lives in Chicago and just about as much as I wanted Storyline I wanted time with this friend.
I could have told Dr. Henderson when I saw him on Monday I just needed to wait for this surgery, because I told God "Yes" to this other thing. I didn't. I was in enough pain and felt urgency in my gut to take this time he'd planned for me on Wednesday. While I was leaving the office that day I ran into a woman I met in the spring as well. It was a "God wink". If you don't believe our times are really ordered by minutes and hours ask me about this woman. She remembered me. We spoke briefly waiting for her daughter to be wheeled out in her chair before having another seizure. We spoke quickly of faith and trust in the exact same good God. What this woman does and the life she leads put everything in perspective for me. It also reminded me why this book I'm writing matters.
I still thought the Chicago trip would happen after I came out of the operating room. I'm one of those super positive, very awake and ridiculously unaware of initial pain people following anesthesia. I think it's because they have to give me so much to get me and keep me under. My EDS makes me metabolize medication so no amount of drugs is really enough. I know this has saved my life a time or two in a different kind of way. The two thumbs up thing is probably annoying to anyone else around me in the recovery room. I learned it from my brave Danica and keep the tradition alive. It only became clear a few days after my surgery how much harder it was on me than I expected. For some reason the anterior cut, the swelling in my neck and in my throat and a strange spiritual and emotional pain pushed me into a final realization. I canceled my flight, my hotel and called my friend. Storyline was a real "No".
This will be the last post on Team Danica. I've tried to do this before and the timing was not right. Because of my own health issues along with a web developer that didn't see my vision, and a real sentimentality about our little blogger home here I kept updating but most of the writing has been going on in another place. In a few days a new website will be launched. This site will redirect you there as well as my own promoting in other ways on the web Please forgive me for the first month as I cringe while I try to get the word out in repetition. This is way out of my comfort zone. I hope you will come over, because I know for sure God's not done with me yet. The new website will be fundamentally different and more fun than just telling long stories. I think you'll love it. Some of Team Danica's posts will be edited and used in part in publication and the rest saved as a beautiful story of God's Grace and goodness to my family and I and infinite love from all of you. You have humbled me and blessed me by walking along side us here. Thank you.
I will end with a long passage I began with on this blogging journey over four years ago. It is from Shauna Niequist and her Cold Tangerines. I would have been her guest at Storyline last week. Her words are woven in the fabric of our story. Please read them and read them again. Team Danica is like the story of God and your story is too. There's something past the pain and suffering, and it's blessing. It's all blessing. It's always Grace.
"When you realize that the story of your life could be told a thousand different ways, that you could tell it over and over as a tragedy, but you choose to call it epic, that’s when you start to learn what celebration is. When you see in front of you is so far outside of what you dreamed, but you have the belief, the boldness, the courage to call it beautiful instead of calling it wrong, that’s celebration. When you can invest yourself deeply and unremittingly in the life that surrounds you instead of declaring yourself out of the game once and for all, because what’s happened to you is too bad, too deep, too ugly for anyone to expect you to move on from, that’s that good, rich place. That’s the place where the things that looked for all intents and purposes like curses start to stand up and shimmer and dance, and you realize with a gasp that they may have been blessings all along. Or maybe not. Maybe they were curses, in fact, but the force of your belief and your hope and your desperate love for life as it is actually unfolding, has brought a blessing from a curse, like water from a stone, like life from a tomb,like the actual story of God over and over. I would never try to tell you that every bad thing is a really good thing, just waiting to be gazed at with pretty new eyes, just waiting to be shined up and- ta-da!........there is something just past the heartbreak, just past the curse, just past the despair, and that thing is beautiful. You don’t want it to be beautiful, at first. You want to stay in the pain and blackness because it feels familiar, and because you’re not done feeling victimized and smashed up. But one day you’ll wake up surprised and humbled staring at something you thought for sure was a curse and has revealed itself to be a blessing-a beautiful, delicate blessing."
Posted by Monica Kaye at 2:03 PM