tag:blogger.com,1999:blog-5108722769003445679.post7648723554215668597..comments2023-07-06T03:39:17.213-04:00Comments on Team Danica: Not health, but healing . . . not the end, but it is the roadUnknownnoreply@blogger.comBlogger2125tag:blogger.com,1999:blog-5108722769003445679.post-50202482866461430882014-03-11T10:34:27.400-04:002014-03-11T10:34:27.400-04:00Today's Washington Post has large article abou...Today's Washington Post has large article about Ehlers-Danlos and Dr. Henderson written by Jeff Leen- should be easy to find on Post websiteNicolahttps://www.blogger.com/profile/06867541424284378640noreply@blogger.comtag:blogger.com,1999:blog-5108722769003445679.post-20880379714220221852014-03-11T00:00:53.474-04:002014-03-11T00:00:53.474-04:00I'm glad you had an update on your page today.... I'm glad you had an update on your page today. A facebook friend posted a link to your blog so I clicked on it rather than going to my list of favorites. The update the link took me to turned out to be an old one (fortunately) when Danica was having new problems. I'm glad to read that things are going well for her.<br /> My daughter and I both have chiari, EDS and IIH. It's been a long journey. Cristina's journey is a story of hope I share with other parents. She had over 25 surgeries between 2004 and 2007 for chiari and associated problems. We never thought she would be better or be able to live on her own. We even had the garage remodeled into a downstairs bedroom for her since she couldn't climb stairs and had trouble walking. Fast forward a few years. She's now 25, a college graduate living on her own and holding down a full time job as a special education teacher. She's off all her pain medications. She will never be pain and symptom free, but she's living the life a 25 yr old should be living. Our miracle was not granted in her complete and total healing, but it was in her remaining a wonderful young lady who's always willing to help others. <br /> I see that same willingness to help others in what you write. Thanks you for that. I pray that your family will receive miracles large and small in the coming years. Anonymoushttps://www.blogger.com/profile/09743564540210199495noreply@blogger.com